This training covers the fundamental concepts related to research data reuse and sharing in health sciences.
By the end of this training, learners should be able to:
- Explain the importance of data reuse and sharing for health research
- Know where to find (open) data for their research
- Explain the concepts of Findability, Accessibility, Interoperability, and Reusability of research data in the context of health sciences
- Understand CARE principles (Collective Benefit, Authority to Control, Responsibility, Ethics) for Indigenous Data Governance
Training outline
- Why is it important to share data?
- Sources of open data for health research (specific to various research topics)
- FAIR principles: Findability, Accessibility, Interoperability, and Reusability of research data
- CARE principles (Collective Benefit, Authority to Control, Responsibility, Ethics) for Indigenous Data Governance
Resources for facilitators and learners
Learning paths
- EMBL-EBI. Finding and using publicly available data - A curated set of online courses. https://doi.org/10.6019/TOL.PublicDataCollection-t.2022.00001.1
- EMBL-EBI. Federated data analysis - From finding data to data analysis following FAIR principles. https://doi.org/10.6019/TOL.FederatedData-t.2023.00001.1
Publications
- Tamuhla, T.; Lulamba, E. T.; Mutemaringa, T.; Tiffin, N. 2024. "Multiple Modes of Data Sharing Can Facilitate Secondary Use of Sensitive Health Data for Research." BMJ Global Health 8 (10), e013092. https://doi.org/10.1136/bmjgh-2023-013092
- Lubiana, T.; Amaral, O. B.; Neves, K. 2021. "Sharing Intermediate Datasets from Systematic Reviews." OSF. https://doi.org/10.31222/osf.io/vbwa9
Videos, webinars, online tutorials
- Journalology OHRI. 2022. RDM Workshop Series - Benefits of Open Data for Public Health.
- Center for Open Science. 2024. Open Science Data for Space Biology and Health Research.
- European Bioinformatics Institute - EMBL-EBI. Finding the Data behind Research Articles with Europe PMC.
- European Bioinformatics Institute - EMBL-EBI. 2020. Europe PMC Programmatic Access Webinar.
- CINECA Project. 2021. Practically FAIR.
- Ontologies in Agriculture. 2021. The CARE Principles of Indigenous Data Governance.
Library guides
- Welch Medical Library. Data Resources for Health & Medical Research.
Collections of resources
- Managing and sharing research data. 2024. EIFL Digital Research Literacy Training Programme Outline for Librarians.
Repositories and datasets
- SRDR+: Systematic Review Data Repository. Agency for Healthcare Research and Quality.
- SYNERGY Dataset, 2024. (open machine learning dataset on study selection in systematic reviews).