This training explains the distinctions between personal and sensitive data and discusses legal requirements for personal and sensitive data protection, as well as data protection procedures and tools.

By the end of this training, learners should be able to:

• Understand how different privacy laws, including the GDPR (General Data Protection Regulation in Europe) define and treat personal and sensitive data
• Be able to identify personal and sensitive data
• Be familiar with different procedures and tools for sensitive data protection

Training outline

• Legal requirements relating to personal and sensitive data protection
• Distinction between personal and sensitive data
• Data protection procedures and tools

Resources for facilitators and learners

Online courses

• EMBL-EBI. Working with sensitive data. https://doi.org/10.6019/TOL.BiocurationSensitive-w.2022.00001.1
• Utrecht University. Policies, codes of conduct and laws - Research Data Management Support
• Utrecht University. Handling personal data - Research Data Management Support

Publications

• Tamuhla, T.; Lulamba, E. T.; Mutemaringa, T.; Tiffin, N. 2023. "Multiple Modes of Data Sharing Can Facilitate Secondary Use of Sensitive Health Data for Research." BMJ Global Health. https://doi.org/10.1136/bmjgh-2023-013092
• Ficek, J.; Wang, W.; Chen, H.; Dagne, G.; Daley, E. 2021. "Differential Privacy in Health Research: A Scoping Review." Am Med Inform Assoc 28 (10), 2269–2276. https://doi.org/10.1093/jamia/ocab135

Videos, webinars, online tutorials

• Journalology OHRI. 2022. RDM Workshop Series - Clinical Trials Data Sharing.
  

• Journalology OHRI. 2022. RDM Workshop Series - Electronic Health Information Sharing and Privacy/Security.
  

• Journalology OHRI. 2022. RDM Workshop Series - Patient Preferences for Data Sharing and Privacy Considerations.
  

• Journalology OHRI. 2022. RDM Workshop Series - Indigenous Health Data and Research at ICES.
  

• Journalology OHRI. 2022. RDM Workshop Series - Sharing Biological Data: Why, When, and How.
  

• IBE Munich 2021. Pseudonymization in Medicine.
  

• NFDI. 2022. NFDI ToolTalk: ARX Data Anonymization Tool.

• Simply Explained. 2018. Differential Privacy.
  

• NIHR University College London Hospitals Biomedical Research Centre. Anonymising Patient Data for Research.
  

• OpenAIRE. 2022. Amnesia Anonymization Tool Tutorial: Load Dataset.
  

• OpenAIRE. 2022. Amnesia Anonymization Tool Tutorial: Data Anonymization.